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September 3, 2010
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The mission of the Rehabilitation Research and Training Center in Neuromuscular Diseases (RRTC/NMD) at the University of California, Davis is to improve the lives of individuals with neuromuscular diseases by developing and evaluating new strategies that address lifelong needs for evidence-based medical care and counseling, psychosocial well-being, education, and independent living.

News

Winter 2005 NMDINFO News 03/08/06

Featuring information on Duchenne and Becker Muscular Dystrophies

Link to downloadable PDF version

To view the Table of Contents and browse selected items in the newsletter, see the Table of Contents


Recent Report - National Institutes of Health Action Plan for Muscular Dystrophy 03/08/06

Read about it here.


Anesthesia Use in Neuromuscular Diseases 07/19/05

Anyone having surgery should be aware of the risks associated with the surgical procedure and/or complications that may arise during and/or after it. For patients with neuromuscular diseases (NMD), there are frequently added risks with the use of anesthesia. While the administration of anesthetics to people with NMDs has become safer over the past decade, there are several things people with NMDs should know regarding their care and the potential for increased risk of complications due to the anesthesia. While certain risk factors are increased in people with NMDs who undergo anesthesia, each individual is different and reactions to anesthetics may be different. The following is a brief description of complications that may occur among people with NMDs who have surgery. As with all medical procedures, you should talk to your doctor about the specifics of your case and what you should anticipate. more


Emery- Dreifuss Muscular Dystrophy 05/01/05

Article on involvement of the heart in Emery-Dreifuss muscular dystrophy (Quest, May-June,Vol 12, No 3, 2005).
Link to Article on MDAUSA.org


Research Reports on Duchenne Muscular Dystrophy 03/28/05

Full Article

  1. A report on the use of corticosteroids for treatment of DMD
  2. Genetic engineering in Duchenne muscular dystrophy


Respiratory Care in Duchenne Muscular Dystrophy: Recommendation of the American Thoracic Society 03/28/05

In August 2004 the American Thoracic Society adopted an official statement on the appropriate respiratory care for patients with Duchenne muscular dystrophy (DMD).

The purpose of the statement is to educate the practitioner about new approaches and therapies that are available for the management of the respiratory complications of DMD. Although respiratory disease in DMD is its major cause of morbidity and mortality, there is inadequate awareness of its treatable nature.

More onRespiratory Care


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